SAN
DIEGO, April 16, 2024 /PRNewswire/ -- On
April 20, 2024, the Lennox-Gastaut
Syndrome (LGS) Foundation will mobilize families, friends, and
communities around the world to 'Step Towards the Cures, Together'
at their 9th Annual Walk 'n' Wheel for LGS Research. Click here to
learn how you can get involved.
Lennox-Gastaut Syndrome (LGS) is a rare, severe,
life-threatening epilepsy syndrome that develops in children and
leads to lifelong disability. About 50,000 people in the United States and 1 million people
worldwide have LGS. There are no cures for LGS. Together, we can
change this!
"Watching Nyla endure years of relentless seizures and the
numerous other battles that come with living with LGS fuels my
determination to fight alongside her for improved treatments,
resources, and support. Every step forward in raising awareness
brings hope not just to her, but to all those affected by this
terrible disease. This journey isn't just about making a difference
for Nyla; it's about creating a brighter future for everyone
impacted by LGS." - Erika, Mom to Nyla, Living with LGS.
All funds raised at this event go directly to the LGS
Foundation's Finding the Cures, Together Research Program. This
vital program drives cutting-edge research that leads to new
therapies and treatments for those devastated by LGS.
A critical part of this Research Program is funding patient-led
research by awarding Cure LGS 365 Research Grants. The LGS
Foundation recently funded an exciting new research study conducted
by Drs. Juliet Knowles and
Zach Grinspan of Stanford University School of Medicine and Weill
Cornell School of Medicine. The research project will identify risk
factors and predict the progression of LGS in young children.
"Dr. Knowles and Dr. Grinspan's work is critical to our mission
of finding cures and without the funds raised from our community
and the Walk 'n' Wheel, we wouldn't have been able to advance this
important work," says Dr. Tracy
Dixon-Salazar, Executive Director of the LGS Foundation and
mom to a 30-year-old daughter who has LGS. "This disease evolves
over time in young children, and we know very little about who is
at risk. This research project will help us understand the risk
factors that lead to LGS and may eventually allow us to intervene
before LGS develops."
For more information, visit the LGS Foundation's website.
About the LGS Foundation
The Lennox-Gastaut Syndrome
(LGS) Foundation is a nonprofit organization dedicated to improving
the lives of individuals impacted by LGS. It educates the public
about LGS, supports families living with the condition, and drives
research to find the cures.
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SOURCE Lennox-Gastaut Syndrome (LGS) Foundation