The patient-led movement is focused on
accelerating progress through awareness building, convening,
partnerships, and the upcoming release of its companion documentary
FOR LOVE & LIFE: NO ORDINARY CAMPAIGN on Prime Video
WASHINGTON, May 22, 2024
/PRNewswire/ -- I AM ALS – a nonprofit movement supporting and
mobilizing people impacted by Amyotrophic Lateral Sclerosis (ALS) –
kicks off its first ALS Community Summit in Washington, DC next week, from May 29 to June 1, 2024. With a growing focus on
collective power to generate quick and urgent progress towards a
cure, I AM ALS is collaborating with numerous ALS organizations and
partners throughout the week. The event also coincides with the
launch of the new and inspiring documentary on Prime Video, FOR
LOVE & LIFE: NO ORDINARY CAMPAIGN, the story of I AM ALS and
its incredible co-founders as they launched a movement to mobilize
the ALS community and revolutionize the path to treatments and
cures.
The I AM ALS Community Summit presents a unique opportunity for
networking, collaboration, and learning among individuals
passionate about making a difference in the fight against ALS.
Patient, caregiver, and other expert panelists will share unique
insights, experiences, and best practices on important issues
facing the ALS community, such as home care, caregiver needs,
accessibility, advocacy best practices, and more. True to its
patient-led mission, a committee of advocates co-created an agenda
based on topics of interest to the community.
A central focus of the week, I AM ALS will host its third annual
ALS Awareness Month flag event, displaying 6,000 flags on the
National Mall, symbolizing the estimated number of Americans
diagnosed with ALS every year. The flag installation serves as a
powerful visual representation of the disease's impact on
individuals and families and will raise public awareness and foster
dialogue about the urgent need for action.
"These events are critical to our goals this ALS Awareness Month
- improving public understanding of ALS, advocating for community
needs, and community togetherness," said Andrea Goodman, CEO of I AM ALS. "The
individuals impacted by ALS are the best experts, and it's our duty
to provide a platform for them to learn from each other's
experiences, inform the public and other stakeholders, and advocate
for meaningful change. We look forward to uniting with our
community and partner organizations to drive progress and make our
voices heard."
Notably, I AM ALS is proud to host Nnenna Freelon at this event, wife of the late
Phil Freelon, the National Museum of
African American History and Culture's lead architect whose life
was cut short by ALS. This partnership underscores I AM ALS's
commitment to equity, inclusion, and amplifying diverse voices in
the fight against ALS.
For more information about I AM ALS and the 2024 Community
Summit and ALS Awareness Month events, including the newly released
documentary on Prime Video and the full list of dozens of
collaborating partners, visit www.iamals.org.
About I AM ALS
I AM ALS is a patient-centric movement
revolutionizing how to end disease. The nonprofit provides critical
support and resources to people with ALS, caregivers, and loved
ones. We empower advocates to raise awareness and lead the movement
against ALS in driving the development of treatments and cures.
Founded in 2019 by husband and wife team Brian Wallach and Sandra
Abrevaya, I AM ALS was born out of their desire to rewrite
the ALS story for Brian and the tens of thousands of other people
with ALS. Learn more at www.iamals.org.
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SOURCE I AM ALS