National public consultations on caregiving seek policy
solutions to address challenges surfaced in the Caring
in Canada
study
TORONTO, May 1, 2024
/CNW/ - Demand for care is growing, the number of senior caregivers
is on the rise, fewer people providing care, and care needs are
becoming more complex with an aging population and rising rates of
disability and mental health conditions. These are findings from
Caring in Canada, a
new study released by the Canadian Centre for Caregiving Excellence
(CCCE). The study provides an analysis of results from a survey
completed more than 3,000 caregivers and care providers from across
Canada.
A new CCCE study finds financial and mental
health supports among most pressing needs for caregivers in
Canada
Caring in Canada
highlights:
- Caregiving takes a toll on a caregiver's wellbeing. One
in four caregivers report fair or poor mental health. Caregivers
are feeling tired (47%), worried or anxious (44%), or overwhelmed
(37%) because of caregiving responsibilities.
- Caregivers are working an "extra-shift."
Caregivers provide an average of 5.1 hours of care a day, adding up
to over 30 hours of unpaid care, or almost the equivalent of a
full-time job.
- Many caregivers are 65+ and may also need care. Nearly
one in five caregivers are over the age of 65. Senior caregivers
are least likely to access any services or supports to help with
their responsibilities – from home modifications, to respite or
transportation services.
- Caregiving can have a significant financial toll. Half
of caregivers have experienced financial stress in the past year
due to caregiving. One in five (22%) caregivers has provided
financial support to their care recipient, with 22% also reporting
having spent at least $1,000 per
month on out-of-pocket expenses.
- Care provider shortage linked to poor working
conditions. 80% of paid care providers, such as Personal
Support Workers or Direct Support Professionals for people with
disabilities, have considered changing careers, citing low
compensation, inadequate staffing, discrimination and lack of safe
working conditions.
- Diverse communities face additional barriers and gaps in
supports. Racialized, Indigenous, LGBTQ2S+ caregivers are more
likely to experience negative impacts of care. For example, almost
half of racialized caregivers have experienced financial hardship
due to caregiving, compared to 34% of non-racialized
caregivers.
Diving into Caring in
Canada
Caring in Canada reveals that financial
supports are the most important priority for caregivers in the
country. Four of five (80%) caregivers noted that free counselling
and mental health supports would be important, with women and
caregivers aged 25-44 significantly more likely to find this
helpful.
The study indicated that senior caregivers have the lowest
levels of awareness and uptake of the supports and services
available to them. As this population may also be managing their
own age-related challenges, increased knowledge and engagement are
needed to outweigh the potential risk of extending the current
crisis. Including the voices of diverse caregivers, such as
Indigenous, LGBTQ2S+, young and racialized caregivers in policy and
program discussions is also critical to designing effective
solutions.
Creating a brighter future of
care
In addition to providing an up-to-date look at the state of
care, Caring in Canada
points to areas of policy development that would address some of
the most pressing issues experienced by caregivers. Reforms to
workplace policies and employment protections, like
caregiver-specific leaves for those juggling work and care
responsibilities, and access to a caregiver allowance are just some
examples. Care providers also voiced a need for benefits, better
working conditions, unionization, and training, as well as
increased compensation, support and safety at work.
Caring in Canada will inform the development of
a National Caregiving Strategy, which CCCE plans to unveil in fall
2024. CCCE has been advocating for such a strategy since their
launch in May 2022 To support this
work, CCCE has assembled a Care Champions Table, which includes a
team of leaders across the ageing, disability and illness
communities, as well as researchers and people with lived
experience to advise on innovative policy solutions. In the 2024
Federal Budget, Minister Chrystia
Freeland committed the government to developing a National
Caregiving Strategy.
CCCE has also launched public consultations to ensure that the
strategy includes the voices of all those who give care. Throughout
the month of May – National Caregiver Month – the public is
invited to complete an online engagement form or attend one of four
online sessions held weekly throughout the month. Registration for
the online sessions is open on the CCCE website.
Quotes:
"Caring in Canada
confirms an urgent need for policy solutions that can make life
easier for caregivers, care providers, and people receiving care.
These include implementing direct compensation for caregivers,
easier access to supports like home care, respite, and mental
health care, workplace policies to support caregivers juggling work
and care, and reforms in the care provider sector." Liv Mendelsohn, Executive Director, CCCE
"Caring for my son for his entire life was an immense privilege,
but toggling between my son's 24/7 care, caring for his younger
brother and managing freelance work as a single mom, made me put my
own needs on the sidelines. Every caregiver should have options
that allow them to flourish," Jennifer
Johannesen, caregiver in Guelph
Ontario.
About CCCE
CCCE is an initiative of the Azrieli Foundation created to
support and empower family caregivers and care providers across
Canada. We bring together
stakeholders from across the country, translate knowledge to
practice, scale what works and fill gaps through innovation. Guided
by four focus areas: support networks and knowledge sharing;
education and leadership development; advocacy and policy
development; and inclusion and underserved communities, CCCE works
closely with partners and grantees towards shared goals and better
experiences for all those who provide care. Our expertise and
insight, drawn from lived experiences, help us campaign for better
systems and lasting change.
SOURCE Azrieli Foundation (The Canadian Centre for Caregiving
Excellence)