LOUISVILLE, Colo., May 12, 2022
/PRNewswire/ -- Enabled by the FDA guidance on the expanded
use of real-world data, Trio Health has partnered with the CIIC to
create the 'first of its kind' HAE (Hereditary Angioedema) Patient
Registry. Trio Health's real-world data platform rapidly converts
structured and unstructured EMR data, in real time, including
physician notes, laboratory and radiology report data. The
Trio-CIIC HAE Registry offers comprehensive insights into the HAE
patient journey, including patient voice. "The data allows us
better visibility into this rare patient population, previously
thought unanswerable, and keeps the patient at the center of this
research," said Jane M. Quigley RN BSN OCN, COO of Trio Health.
Trio delivers fit for purpose therapeutic real-world data
services to support the entire product lifecycle, including
real-time longitudinal data, persistency and compliance,
supplemented retrospective patient data, social determinants of
health and rapid identification of patients for clinical
research.
The Trio-CIIC HAE Registry contains 419 physician-confirmed HAE
patients with an average of 5.1 years of clinical data per patient,
including 3,000 office visit notes detailing HAE attacks, therapy
decisions and patient reported outcomes. "Our plan is to increase
the HAE Patient Registry beyond 500 patients from 15 of our private
practice CIIC sites in the coming months, collecting deep clinical
insights across a geographically diverse organization," said CIIC
President, Dr. Jason Raasch.
Trio's unique business model, partnering with physicians and
patients, empowers dynamic relationships with all key stakeholders.
As a network, we are working to synchronize physician clinical note
conduct to a common format of documenting the office visit and HAE
attack notes, in highly useful detail. "This is a comprehensive,
representative and inclusive patient registry, allowing us to
refine 'best practices' and promote a harmonized standard of care
for HAE patients," said Dr. William
Lumry, Medical Director of the AARA Center in Dallas and CIIC member.
The Trio-CIIC HAE Registry's mission is to empower regulatory
grade evidence and insights in support of patients, providers and
biopharma.
About the Consortium of Independent Immunology
Clinics
The CIIC is a professional medical organization of
Board-Certified Allergists and Immunologists in private practice
throughout the USA providing
high-quality care for patients with Primary Immune Deficiency
Disorders (PIDD), allergies, asthma, and other rare diseases. We
support procurement negotiations, promote access to treatment,
serve as advocates for patients and physicians and participate in
research that benefits patient care. Learn more:
www.ciiclinics.org.
About Trio Health
Trio Health is a leading provider of
real-world data. Our Multi-Disease Platform (MDX) features
bi-directional efficiencies, integrating directly into practice
EMRs providing complete physician workflow support. Trio's
comprehensive data empowers physician networks to create and
utilize their own practice insights for research and analytics with
unparalleled speed and precision. Trio Health, in collaboration
with its patient care stakeholders, delivers robust disease
networks, insights, and opportunities that do not exist with any
other real-world data providers. Learn more:
www.triohealth.com.
Contact: realworld@triohealth.com
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SOURCE Trio Health